Kelly Phelps

Kelly's 5km Color Obstacle Rush page

Fundraising for TOFS
raised of £500 target
Donations cannot currently be made to this page
Participants: Tracy Brennan, Stella Hill, Heather Siddle, Caroline Sumner, Brounagh Smith, Kerrie Shields, Sarah McPherson & Lisa Garton

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RCN 327735
We help children & adults born with TOF/OA to ease living with this rare condition


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Liberty was born on the fourth of November 2015. After a difficult pregnancy and labour which resulted in Liberty coming into this world by an emergency cesarean section, it transpired that all wasn't right with our precious baby girl.
Liberty was taken away from us straight away and some time later we received a visit from a nurse and neonatal specialist......we knew it wasn't good news!!!
We were informed that during the pregnancy Liberty's oesophagus hadn't developed properly, she had tracheo-oesophageal fistula (TOF) and oesophageal atresia. Liberty had to be transferred to Sheffield straight away for surgery. Thankfully we got to hold our baby girl for a few minutes before she got whisked away by Embrace, a highly specialist round the clock transport service for critically ill infants and children.
Liberty had surgery to repair her oesophagus at one day old which she recovered fantastically from and after 12 days on NSU at Sheffield Childrens Hospital she came home!! Unfortunately that night, unbeknown to us at that time, Liberty's oesophagus had started to close up!! Two days after her discharge from SCH we were back there. Liberty's oesophagus had closed up and she needed an operation to stretch it open, back to theatre she went!! Unfortunately this procedure wasn't as straightforward as expected and Liberty sustained a perforation which resulted in a pneumothorax (collapsed lung) so back to theatre she went for a chest drain inserting. It's heartbreaking to see test after test being carried out, needle after needle, some of which were in her head, causing distress to your baby and you can't even hold her to comfort her because of the chest drain!! 2 whole weeks without being able to hold her!!!! But you know that the chest drain and the replogel tube that is running into her nose to the back of her throat suctioning all the saliva is the only thing stopping her from deteriorating further and God only knows what happening!!! Over the next five weeks Liberty had a further two trips to theatre, one of which identified another congenital abnormality called oesophageal stenosis (a narrowing), each trip presenting the same risk as the previous. We'd experienced that nightmare once before and we prayed we didn't experience it again. Eventually Liberty got stronger and stronger and was finally discharged home on Xmas Eve, the best Xmas present we as a family could ever ask for!!!
Since Xmas, Liberty has had two more trips to theatre for stretches and more surgery is planned in the very near future. As a family we try to stay strong and positive, we have to for our beautiful baby girl and we take it one day at a time.

We know that for Liberty to have the best possible care and support throughout her life, the good work of several charities needs to continue. For this to happen it requires the support of the community, it requires the support of those people that know Liberty & children like her, it requires the support of those people who have read her story to give to these worthy causes.
On 25th June, myself and eight other wonderful ladies, collectively named 'LIBERTY'S BELLES' are participating in The 5km Color Obstacle Rush Sheffield in the hope to raise essential funds for those significant charities. Please give to these worthy causes, no matter how much or how little, it will all go towards making a difference to the future of Liberty and children like her.

TOFS provide support to the families of children born unable to swallow due to the rare congenital conditions; tracheo-oesophageal fistula, oesophageal atresia & other associated conditions. This organisation is invaluable to us as parents, family and friends of 'toflings' like Liberty, we are able to share our experiences, offer advice, support each other through those difficult times & celebrate with each other when things are going good & mile stones are achieved.

About the charity


Verified by JustGiving

RCN 327735
TOFS offers support to people born with Tracheo-Oesophageal Fistula (TOF) and/or Oesophageal Atresia (OA). These are rare congenital malformaltions of the gullet and windpipe. Immediate neonatal surgery is a treatment, not a complete cure. We are UK-based and receive no public-sector support at all.

Donation summary

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+ £112.50 Gift Aid
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