Kully Sheamar

Simrans October Rett Syndrome Awareness Month 2021

Fundraising for RETT UK
raised of £1,000 target
by 35 supporters

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RCN 1137820
We change lives and give a brighter future to those affected by Rett syndrome. Now.


This charity is very close to our heart as our loving daughter Simran was diagnosed with Rett Syndrome at the age of 18 months and now is 10yrs. Were wanting to raise as much as we can so it helps families like us to find a cure for this syndrome. So please donate today for Rett Syndrome Awareness Month of October. Read below as it tells you about the condition.

Rett syndrome is a rare neurological disorder affecting mainly females and very few males. It is present from conception and usually remains undetected until major regression occurs at around one year of age, when children may lose acquired skills and become withdrawn. Genetic but largely not in herited, Rett syndrome is usually caused by a fault on a gene called MECP2 which is found on the X chromosome. People with Rett syndrome have profound and multiple physical and communication disabilities and are totally reliant on others for support throughout their lives.

Rett syndrome was first described in 1966 by the Austrian doctor, Andreas Rett. It could occur in any family and affects approximately 1 in 12,000 girls born each year.

Thank you for all your donations to help our Girls and Boys 

Kully, Husan and Simran 

About the charity


Verified by JustGiving

RCN 1137820
Imagine being told your toddler you thought was healthy, but perhaps slow to progress, in fact had a rare and devastating disability that would leave them needing lifelong 24/7 care. Rett syndrome changes lives irrevocably. With your support Rett UK is there from the beginning. #ToKnowHerIsToLoveHer

Donation summary

Total raised
+ £158.75 Gift Aid
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