Story
LilyAnna is our beautiful first born who is now 19 years old. Lily was born with CDKL5 deficiency disorder (CDD) and it has come with multiple complications that leave her reliant on us for everything. I am pledging to move my body every single day to stay mentally and physically strong for our girl and I ask that you join me as I try to reach the goal of $1000 (collectively $100,000) to ensure the future of CDD is better than it's present!
