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Lisa du Plessis

Lisa's marathon fundraising page

Fundraising for Tourettes Action

157 %
£1,180.42
raised of £750 target
by 62 supporters
Donate
  • Event: London Marathon 2017, 23 Apr 2017

Tourettes Action

Our vision is a world where people with Tourette Syndrome (TS) receive the practical support and social acceptance they need to help them live their lives to the full. We help people with TS to be included in education, at work and in society, throughout their lives. We also support research to improve their quality of life.

Charity Registration No. 1003317

Story

I wanted to run the London marathon for a personal goal. I was lucky enough to get a ballot place for the 2016 london marathon but due to a hip injury I had to pull out. I am hoping to get to the start line this year without another serious injury. 

I am a Cognitive Behavioural Psychotherapist and I work in Private practice following many years in the NHS. I noticed over the past 3 years, a significant increase in referrals for children from all over the country who cannot access support or treatment in the NHS in their area once diagnosed with Tourettes Syndrome. I am treating children from Swansea, York, Leicester and other areas, even though I am based in St.Albans, Hertfordshire. The shocking thing is, the parents that are self-referring their children to my private practice have no alternative for their children. CBT is not being offered to many children on the NHS, despite it being the strongest treatment indicator for reducing Tics and distress associated with Tourettes. They are being forced to go private or to leave their children distressed, in pain and suffering. Tourette's Action is a brilliant charity supporting families and offering training.  I want to raise money for Tourettes Action as I work closely with the charity and see the awareness campaigns , support and life changing help they can give to people diagnosed with Tic Disorders including Tourettes Syndrome and their families. 

Tourettes Action run courses, offer educational information, advice, signposting, kindness and basic but extremely important listening skills. Tourettes Action is a small Charity and although I do not have anyone in my family experiencing problems with Tourettes, I feel passionate about raising awareness of TS and hope access to treatment will be offered routinely on the NHS in the near future. In the meantime I want to raise £750 to help support this amazing charity.

"What is Tourette Syndrome?

Tourette Syndrome (TS) is an inherited, neurological condition, the key features of which are tics - involuntary sounds and movements.

TS is a complex condition and covers a wide spectrum of symptoms ranging from mild to severe. 85% of the TS population will also experience co-occurring features and conditions such as ADHD, OCD and Anxiety.
Typically the onset of TS occurrs in early childhood (around 6 years) and is more common in boys." (Tourettes Action 2017).



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