Almost 2 years ago one of my sons, Charlie, was diagnosed with a rare chromosomal deletion, 2Q37.1. Only 150 people in the world have this exact deletion so, as you can imagine, there isn’t much literature on it. This makes it really difficult for others to understand how to help him, including us, and what problems may arise in the future. He is the most loving, cuddly, happy boy and we would love to be able to find out more about his deletion. Raising money for such charities means more research into these rare conditions making it easier for others to understand and help people like Charlie. If you can donate anything, however much, it would be greatly appreciated! Thank you.