Story
My story
I’ve never known a life unaffected by Cystic Fibrosis. I’m the middle boy of three, and both of my brothers (Jonathan and Barnaby) were diagnosed with Cystic Fibrosis at birth. I witnessed them battling this condition every single day, all while living with the knowledge that their lives would likely be abbreviated. And very sadly in 2015, Jonathan passed away aged just 31.
I found running helpful to process the grief and feel more connected to both my brothers. When you’re running long-distance, you become very fixated on your breathing and lung capacity – issues anyone with CF has to think about every day.
My brothers became my inspiration…so when the thought came to run a marathon, it had to be a special one and it had to be in support of a Cystic Fibrosis charity.
And so I look forward to October 2…
It’s incredibly special to be running in the city where Barnaby and I were born, and a great honour to run for a charity that supported my family significantly during those early years – the Cystic Fibrosis Trust. The CF Trust is the main agency in the UK providing support services to people with CF and their families. They fund research, improve standards of care, provide information and support, and fight for access to life-saving drugs.
It's been a journey – I was meant to run in early 2020 and had done all the training but the race was deferred three weeks out due to COVID. From doing all the training again this time, to being hit by a car while running, and dealing with all the highs and lows that come with traversing those crazy distances – it’s been quite the ride. But having come so far (physically & emotionally!), the time to run is nearly here!
I’m running in memory of Jonathan, in support of Barnaby and my parents, and for all those families that are affected by Cystic Fibrosis. Your support means a lot, and thank you in advance for your generosity.
