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Sandhoff Disease is a rare and cruel genetic condition. Our Mallorcan friend, Rodrigo, was diagnosed last year, aged 5 years old. There is currently no cure or treatment and without one, Rodrigo is unlikely to live into his adolescence.

You can read his story here http://www.bakedpotatomummy.co.uk/sandhoff-disease-rodrigos-story-2/

It's a race against time for him and children like him. Can a treatment be found in time?

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