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LUIS RORO's is taking part in the TEDDY WEARS BLUE/CURE AADC Campaign

MONICA FUENZALIDA is raising money for The AADC Research Trust
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TEDDY WEARS BLUE/CURE AADC · 22 May 2017

HELP us HELP our children! Raise Funds and Awareness about our RARE Disabling and Life-Threatening Brain Disease Wear BLUE for AADC deficiency and DONATE £2 to our cause! ​ 22nd May to 28th May 2017​

Story

Hello everyone,

My name is Luis Rodrigo Fuenzalida. I'm 13 years old and I was diagnosed with AADC in July 2010. This means that I suffer from a rare genetically inherited brain disease. My brain lacks the ability to complete signals which instruct my own body to move and function for even the simplest of tasks. As of right now, we are only 3 families in Maryland and only around 30 families in the USA. 

Children with AADC Deficiency suffer profound and life threatening disabilities.There are around 130 known cases worldwide. AADC RESEARCH TRUST has been with us since the beginning, it is our support and With your help we will fund AADC Research to try and improve the current available treatment like the Gene therapy.  AADC Deficiency Research is vital to the survival of children living with this disease. OUR MISSION TODAY is to raise money for upcoming treatments and research to discover the cure. Please join us wearing BLUE this coming week May 22-28.  Share your picture wearing blue and use the following hashtags to raise awareness on social media!

#teddywearsblueforaadc #aadcchildren #blue4aadc #aadcdeficiency #cureaadc

Remember every dollar counts in our mission to change these children's lives.

More information at www.aadcresearch.org 

Thank you for your donations

Fuenzalida Family

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Donation summary

Total
US$1,508.00
Online
US$1,508.00
Offline
US$0.00

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