50 %
£30,520
raised of £60,000 target
by 308 supporters
Donate
Marc van Grieken avatar
Marc van Grieken

Please support 'Shaky team from Shaky Toun'

We finished the 81 mile Etape but keep going for Parkinson’s UK because I want to fund Parkinson's research

50 %
£30,520
raised of £60,000 target
by 308 supporters
Donate
  • Team members: The 'shaky team': Donald Coltart, Nick James, Stuart Henderson, Pete Murray, Keith Vance, Ian Findlay and me.
  • Event: Etape Caledonia 2017, 21 May 2017
  • Team: Shaky Team from Shaky Toun

Parkinson’s UK

We offer support and fund research to find a cure for Parkinson's

Charity Registration No. 258197 and Scotland SC037554

Story

THE SHAKY TEAM KEEPS GROWING:
More than three months ago, the 'Shakyteam from Shaky Toun' completed the 81 mile Etape Caledonia. This was my sixth time and I am very happy to have finished it in under 6 hours despite the progression of my Parkinson’s disease.

BUT,  fundraising didn't stop and indeed Shaky Team Member  Keith Vance completed the Edinburgh Marathon on 28th May and Keith cycled the Ochils ton (100 miles!) with Stuart Henderson a week later.

Other  fantastic fundraisers were Brian's music quiz, Grant and Neil's curry night, A&DS's promises Auction, Colin's networking, Chloe's half marathon and Kenny's music night. This has all contributed to passing the 50% of my target mark and your support continues:

Upcoming fundraising activities are: Chris' bike ride from Vancouver to Whistler this weekend, Lottie and the 'Comrie Crusaders' Glasgow 10K and  a fashion show to 'shake up your wardrobe'.

and there is more to be announced.

It is more than 10 years ago since I was diagnosed with Parkinson disease which presented itself to me by ‘stopping my right leg from moving’ whilst running which used to be my favourite exercise. I thought initially that I could ignore it and pretended nothing would change and that it would not affect my family and my daily life. I also thought that if I told people that I had Parkinson’s, that I would be, sympathetically perhaps, cast aside by the wider world.


I was wrong on both counts. Parkinson’s disease does affect your family and my partner and daughters have been brilliant and very supportive, and people in the wider world have stuck with me. I’m extremely thankful for that.

Once I had accepted the reality of the disease and started telling people I was particularly struck by the following reaction: “Oh, I have known for years that you have Parkinson’s, I recognise the symptoms because my father has it”.

This hammered home the reality and also the fact that there are many people affected by this disease. I have since met numerous people who are affected by Parkinson’s disease and have also learned that there are different versions (so to speak) and different stages but in all cases there is progression of the disease resulting in a worsening of symptoms, reduction in mobility and for some a gradual erosion of quality of life. Being honest that is scary. 

I am fortunate that the progression of the disease for me personally has been slow and I am touching every bit of wood to keep it that way. I also believe that with adequate funding of appropriate research this dreadful disease can be tamed or cured. For this reason I want to try and raise as much money as possible for research into finding a cure for Parkinson’s. My fundraising target is very ambitious but if it is achieved it would fund cutting edge research for a full year and fund a Parkinson’s nurse for a day a week for a year. (Source: Parkinson’s UK)

As you may know, I have just celebrated my 60st birthday and this inspired me to set a target of £60,000 and a donation towards funding research into Parkinson’s disease would mean a lot to me.

Any amount will be gratefully received!  

Many thanks, Marc



PS I do most of my cycling from Comrie which you might know has the nickname ‘Shaky toun’, and you probably know that most people associate shaking with Parkinson’s.
Therefore I called this team: ‘Shaky team from shaky toun’.

Photos

6
  • Stuart  'Shaky Team from Shaky Toun' member Henderson
  • Donald Coltart and me 08 Jan 2017 +4

Supporters

308