Help us support DSUK in finding a cure for babies like Emily!

Mark Garrison is raising money for Dravet Syndrome UK
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3 Peak Challenge · 9 August 2019

Dravet Syndrome UK is dedicated to improving the lives of children and adults living with Dravet Syndrome through medical research, education and awareness and appropriate support.

Story

Me and Mark are going to be tackling the 3 peaks challenge in August 2019 to raise money for Dravet's Syndrome UK. This is a cause personal to us following Mark's baby cousins life-changing diagnosis this year.

The 3 peaks challenge involves climbing the 3 highest mountains in England, Scotland and Wales - in one go! Those who know us well know we love a hike but this is WAY bigger than anything we have done before! The closest we have got to this is probably when Mark made me walk to Brighton which was not a nice experience - but this is another level, involving 15 hours hiking, on steep inclines and descents, whilst dealing with sleep deprivation and altitude changes, whilst reaching heights of up to 1345m.

Dravet Syndrome, also known as Severe Myoclinic Epilepsy of Infancy, is a rare and catastrophic form of intractable epilepsy that begins in a baby's first year of life with frequent and prolonged seizures. Current treatment options are limited, and the constant care required for someone suffering from Dravet syndrome severely impact's the patient's and family's life. Patients with Dravet syndrome face a 15-20% mortality rate due to SUDEP (Sudden Unexpected Death in Epilepsy), prolonged seizures, seizure related accidents, and infections.

Please help us support Dravet Syndrome UK's research into a cure for patients and families like that of Marks cousin's for a better quality of life - we will be forever grateful for any donation made, no matter how big or small <3

Love Ingrid & Mark

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Total
£3,610.43
+ £376.75 Gift Aid
Online
£3,610.43
Offline
£0.00

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