Thanks for taking the time to visit my JustGiving page. I'm running the London Marathon this year for the Cornelia de Lange Syndrome Foundation, a charity with close family ties and one that would really appreciate your help. CdLS is a rare genetic disorder which doesn't receive much coverage, so it is up to the Foundation to help raise awareness and promote research. Children and adults with CdLS have multiple disabilities and because the condition is so rare families have real problems finding up to date and accurate information. The Foundation receives no support from the government and all funds raised are through private donations. Any help you can give is greatly appreciated and will really help children and adults with CdLS and their families. Many thanks for your help.
Matt