hugh taylor

Conquering Kilimanjaro for Helen & Douglas House Hospice

Fundraising for Helen & Douglas House
£5,772
raised of £5,000 target
Donations cannot currently be made to this page
Participants: Myself and 10 others including my best friend Gary Purnell will be climbing with me.
Helen & Douglas House

Verified by JustGiving

RCN 1085951
We provide care at the hospice and at home to children in the Thames Valley region

Story

On the 23rd of August 2015 my beautiful daughter Melina Eliz Taylor was born this was the happiest day of my life.  8 weeks on she was diagnosed with a rare and terminal illness SMA type 1 (Spinal Muscular Atrophy) this then became the saddest day of my life.

SMA is a genetic disease that causes muscle degeneration in babies, meaning they lose their ability to move, swallow and smile and ultimately stops them from being able to breathe.  It is a savage and aggressive disease and 95% of babies with SMA type 1 do not reach their first birthday.  Melina is a little fighter and will hopefully turn 2 this August :).

As she has become progressively more poorly we have spent many weeks at Helen and Douglas House Childrens Hospice in Oxford.  They have helped to make her short life as happy and fun as possible but have also supported Melinas mum and I through this difficult journey.

The Hospice receive only very minimal funding from the government and it is only through private donations that they are able to survive and continue to support families like ours.

I urge you please to give whatever you can afford and i promise i will strive my hardest to make the summit!

If you wish to know more of our journey, please go to 'Melinalittlemermaid' facebook page.

Thank you 

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About the charity

Helen & Douglas House

Verified by JustGiving

RCN 1085951
Helen & Douglas House helps local families cope with the challenges of looking after a terminally ill baby or child who will die prematurely. We are a home from home for our patients and their families, and provide round-the-clock care in a warm, loving environment.

Donation summary

Total raised
£5,771.61
+ £734.20 Gift Aid
Online donations
£5,771.61
Offline donations
£0.00

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