We, the Moroney's: Tadg 5, Mikey, 9, Conor 12 and Mom (forever young) are pledging to jump for 12 Hours Straight TWELVE HOURS in tag team formation. We will be supported by our Dad who will ensure we complete it and will take photos and give us food and water when we are on a break. 

We will do this on April 16th 2020, weather permitted and if it is wet we will do on the next possible dry day.

Why are we doing this?  To raise awareness and support for children living with EB and the families that support them. Also, during this uncertain time of Covid-19, Debra Ireland, as all charities right now, are really behind with their funding and need your support NOW more than ever. Even the cost of a cup of coffee and a slice of cake that you are unable to spend at present will make a huge difference.

What is EB?

EB - Epidermolysis Bullosa: A severe rare genetic skin blistering condition

EB - Extraordinary Butterflies:  EB skin is as fragile as the wings of a butterfly

EB - Endless Blistering: Even gentle skin contact causes devastating wounds

EB - Excruciating Bandaging: When dressings stick, the skin often comes away too

EB - Exhausting Battle: There is no cure and a high risk of developing aggressive skin cancer. 

EB = The worst disease you've never heard of

Please help us with this special mission and donate what you can.  Debra Ireland receive less than 2% government funding and need the help and generosity of the public to provide the amazing support, care and research towards finding a cure that is so desperately needed for these children fighting for a normal life every day.

Thanks for taking the time to visit my JustGiving page.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.