Thanks for taking the time to visit my JustGiving page.

Ruperts story... Back in October 2016 Rupert was diagnosed with mucopolysaccharidosis Type ll (MPS ll) or Hunter Disease.

I remember like it was yesterday sitting in a small room with no windows in the hospital with a box of tissues on the table between us and Ruperts consultant. To be told your child has a life limiting condition, is, I think something you can never ever prepare yourself for let alone get used to. It's more you have to, so you do...

This is where EACH has been amazing. Rupert attends quidenham children's hospice.  Their help and support is second to none. The hospice makes you feel Normal that you CAN do this and your not alone. 

It's an Elite club... That nobody wants to be in.... But some of us are.

Please support EACH and all they're amazing families.

Thank you x

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