The 2nd of March will mark a year since we discovered we were high chance of our unborn baby having Down Syndrome. The pregnancy was difficult thereafter, as we discovered our unborn baby had hydrocephalus (severe fluid on the brain). Each week seemed to pose further concerns and very little positivity from the health care professionals around us. We were prepared for the worst. 

In August our gorgeous son, Henley, was born with a confirmed diagnosis of Down Syndrome and none of what we were told to expect happened. Our son did not need ventilation, a shunt or any medical interventions. 

During our pregnancy, we found Positive about Down Syndrome who are a charity that spoke from experience- the good, the bad and the real. This charity have been instrumental in supporting us during our pregnancy and since Henley was born. They answered so many questions and as a charity are so proactive in supporting families.

PADS provide online support for families, they acknowledge how important it is for families to have access to accurate contemporary information they have produced books such as #NobodyToldMe the truth about Down syndrome for families and provide literature to maternity units.

They have online development groups, baby Makaton signing courses for new parents and Makaton training for members’ nurseries/childminders.

So in the run up to World Down Syndrome Day on the 21st March, I will be completing a 21 day challenge. I will complete a different activity each day until the 21st. 

These activities will include dance, drama, crafts, art and much more.

A massive thank you to the local businesses, family and friends who are helping me with these activities.