Pilks 2022 Challenges
Nick Pilkington is raising money for Duchenne UK
Story
Duchenne muscular dystrophy (DMD) is a devastating muscle-wasting disease.
It is the most common and severe form of muscular dystrophy.
Diagnosed in childhood, it’s the most common fatal genetic disorder to affect children around the world.
If you've got it, you can't produce dystrophin, a protein you need to build up your muscles.
As a result, every muscle in the body deteriorates. At the moment there is no cure.
The facts about Duchenne are inescapable:
Duchenne Muscular Dystrophy is 100% fatal.
Most kids with it die in their late teens or early
twenties.
Most with it are usually in a wheelchair by the age
of 12.
It leads to respiratory failure, heart failure, and
other debilitating orthopedic complications.
One in 3,500 boys is born with it, and in the UK
2,500 kids has it at the moment.
Started by families affected by the disease, Duchenne UK is the leading DMD charity in the UK: connecting the best researchers with industry, the NHS and families to advance and accelerate every stage of drug development.
Duchenne UK have been providing care for my nephew and his family.
They have assisted my nephew with care, training in everyday treatment for his parents, accessories for the house to make his everyday life as comfortable as possible and they have also provided his specialist wheelchair.
The support has been amazing and this is my way of saying thank you!
This year we have 4 challenges (at present) and the guest list of my trustee sidekicks is massively appreciated.
Event 1: Rat Race 7th May - 20 Miles and 200 obstacles. (Pilks and Colin Lever)
Event 2: Total Warrior 25th June - 10 Miles of mud based obstacles. (Pilks and Garfieh Cheung AKA Qui-Gon)
Event 3: Peak District Ultra Challenge 9th July - 25KM. (Pilks and Nichola Hodson)
Event 4: Yorkshire Ultra Challenge 23rd July - 50KM. (Pilks and Nichola Hodson)
Any donation will be gratefully received and will go to a great cause!
Together we will end Duchenne!
Bless Ya
Pilks x
It is the most common and severe form of muscular dystrophy.
Diagnosed in childhood, it’s the most common fatal genetic disorder to affect children around the world.
If you've got it, you can't produce dystrophin, a protein you need to build up your muscles.
As a result, every muscle in the body deteriorates. At the moment there is no cure.
The facts about Duchenne are inescapable:
Duchenne Muscular Dystrophy is 100% fatal.
Most kids with it die in their late teens or early
twenties.
Most with it are usually in a wheelchair by the age
of 12.
It leads to respiratory failure, heart failure, and
other debilitating orthopedic complications.
One in 3,500 boys is born with it, and in the UK
2,500 kids has it at the moment.
Started by families affected by the disease, Duchenne UK is the leading DMD charity in the UK: connecting the best researchers with industry, the NHS and families to advance and accelerate every stage of drug development.
Duchenne UK have been providing care for my nephew and his family.
They have assisted my nephew with care, training in everyday treatment for his parents, accessories for the house to make his everyday life as comfortable as possible and they have also provided his specialist wheelchair.
The support has been amazing and this is my way of saying thank you!
This year we have 4 challenges (at present) and the guest list of my trustee sidekicks is massively appreciated.
Event 1: Rat Race 7th May - 20 Miles and 200 obstacles. (Pilks and Colin Lever)
Event 2: Total Warrior 25th June - 10 Miles of mud based obstacles. (Pilks and Garfieh Cheung AKA Qui-Gon)
Event 3: Peak District Ultra Challenge 9th July - 25KM. (Pilks and Nichola Hodson)
Event 4: Yorkshire Ultra Challenge 23rd July - 50KM. (Pilks and Nichola Hodson)
Any donation will be gratefully received and will go to a great cause!
Together we will end Duchenne!
Bless Ya
Pilks x