I am so very lucky to be able to volunteer at Marina and Friends Fundraisers which raise money for MPS. Marina's granddaughters both were affected by mucopolysaccharide dieseases and sadly died because of them. The MPS Society always needs money to continue very important research.  This month of January my husband Andy and I are giving up the booze to help these  sweet children have a better life! 

Here's some amounts that'll help you understand what your money can do:

• £5 buys 10 small flasks to grow cells for testing the effectiveness of therapies for neurological diseases

• £16 buys 200 storage containers for blood samples so that patient samples can be stored and used to test effectiveness of therapies and to develop new biomarkers of the disease

• £25 supports a tree planting and inscription in memory for one bereaved family at the MPS Childhood Wood

• £60 would enable one family to attend a regional family event, such as a trip to Cadbury World, to have fun with other MPS families;

• £100 is the average cost of a home visit from a member of theAdvocacy Team to an affected family providing practical and emotional support

• £200 enables a child who lives with a brother or sister with MPS, to attend a Sibling Activity Weekend encouraging peer support and an opportunity to share stories and have fun!

• £1000 would fund 6 specialist MPS clinics in a year