Harvey Hext was a wonderful little boy. He was full of cheekiness and loved to cause mischief with twin brother Spencer. Harvey had Down syndrome. 

In 2010 at the age of three, he was diagnosed with stage 4 , high-risk neuroblastoma, an aggressive form of childhood cancer. His parents David and Sarah soon discovered that there were no other cases in the world of a child to have both neuroblastoma and Down syndrome.

In 2014 Harvey and his family attended an event hosted by a charity called Believe in Magic. There Sarah met a lady named Johannah Deakin, a mother of seven, including two sets of twins.  Johannah was touched by Harvey and the Hext family’s story. She went home and told her eldest son all about the family. Her son is Louis Tomlinson, one-fourth of One Direction, arguably the world's biggest boyband. 

Louis was as moved as his mum over the story of Harvey and wanted to help as much as he could. Over the next year Louis and his mum gave them some magical moments that the family can treasure forever, including a trip to Disneyland Paris, VIP treatment at one of the band's shows, and VIP treatment at a ball hosted for sick children and their families. He also bought them thoughtful and personal gifts.

When Johannah heard that Harvey's health was declining her and two of her children travelled from their home in Yorkshire to Bristol to spend some time with the family.

Harvey sadly gained his angel wings on the November 29^th, 2015. Louis was one of the first to tweet his condolences at the loss of his buddy. Johannah and her family also once again travelled to Bristol to say goodbye to and celebrate the life of the wonderful little boy who they all held a lot of affection for.

Harvey had two siblings, his twin brother Spencer and his older sister Olivia. Grieving for the loss of a sibling, especially when you are a child yourself, can be extremely difficult, so Harvey’s mom Sarah came up with the idea of donating memory boxes to
children who have lost a sibling. These are beautiful personalized boxes where objects, photographs and notes from the child that has passed can be kept and treasured. Sarah has been setting up a charity named “A siblings wish” (@asiblingswish) to make these boxes available to as many children a possible. The charity should be available for donations soon.

In the meantime, to honor Harvey’s birthday (July 30^th), we are fundraising for Solving Kids Cancer, a charity suggested by Sarah Hext. Solving Kids Cancer over the years has raised funds to support families to access clinical trials for children affected by cancer and for research into numerous childhood cancers including neuroblastoma, of which Harvey was affected. Help us honor Harvey! Make a donation today!