We are raising money to help support the PKU research charity
that is located at Birmingham’s Children’s Hospital.What’s PKU you ask?....Phenylketonuria (PKU) is an extremely rare inherited disorder. Our bodies break down the protein in foods, such as meat, fish and dairy into amino acids, which are the "building blocks" of protein. These amino acids are then used to make our own proteins. Any amino acids that are not needed are broken down further and removed from the body. People with PKU cannot break down the amino acid phenylalanine, which then builds up in their blood and brain. This can lead to brain damage.

Sounds scary! BUT this rare condition is treated through
Special supplements, a very strict diet for life and incredible support from specialist dietitian from the NHS.

How do I know about PKU? Well, our gorgeous baby boy Henry
was diagnosed with PKU on day 8. We received the diagnose shortly after the results from his heel prick test that’s given to all babies in the UK on day 5 after birth. The statistics of getting PKU is 1 in 10,000. Henry was baby number 9 last year, which is now his lucky number!

To put the diet into perspective the average person unknowingly consumes around 60-70g of protein a day. Henry can only tolerate 5g at the moment!  

After learning so much about the condition within the past year
we want to help contribute towards research as there is so much more to
explore.

How are we raising money?…… My crazy brother Dominic has
volunteered to jump out a plane 14,000 feet in the air in aid of  PKU research, what a brave guy! I couldn’t have the bottle to do that.

Any donations are hugely appreciated, please help us raise
as much money as possible for everyone both adults and children with PKU.

Thank you

Lots of love

Rebecca, Grant and baby Henry. xxx