CDKL5 is a rare genetic disorder, also referred to as a "Rett-Like" disorder.  Children with this condition suffer many seizures daily, have severe developmental delays, severe reflux, most are non-mobile, and all are non-verbal.  CDKL5 UK was set up by a group of parents, who want to reach out and support others, as well as raise vital funds to aid research, and to spread awareness.

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