Paul Bouwmeester

I support Professor Conny's walk for Chromosome 6

Fundraising for UMCG/Chromosome 6 Research
€285
raised of €1,200 target
by 8 supporters
Donations cannot currently be made to this page
Event: 1200 km walk for Chromosome 6, from 1 April 2019 to 30 June 2019
Professor Conny will walk 1200 km along the Camino de Santiago and she asks for your support for the Chromosome 6 Project. This research project aims to support children with extremely rare chromosome 6 disorders and their families.

Story

Dear friends, family and all other interested parties,

I am pleased to share this amazing project with you. This time our Professor Conny has decided to dedicate her journey along the Camino de Santiago de Compostela to her research project for 'our' children with the extremely rare Chromosome 6 disorder. She is walking 1200 km along this legendary medieval pilgrimage trail and asks for your support for the Chromosome 6 Project. I'm supporting her by doing a 10 km fundraise run on april 22 at castle De Haar.

Why? The final goal is in sight! The realization of the interactive-, self-learning system, that will help children like our Roeland, needs a final anount of money. Hopefully Professor Conny's journey, my run and other actions will provide a lot of money.  Please read all about it on www.chromosome6.org

Thank you so much,

Paul Bouwmeester, on behalf of my son Roeland and his Chromosome 6 friends


About the campaign

Professor Conny will walk 1200 km along the Camino de Santiago and she asks for your support for the Chromosome 6 Project. This research project aims to support children with extremely rare chromosome 6 disorders and their families.

About the charity

Chromosome 6 disorders are very rare. They cause significant congenital defects and developmental delay in children. You can help us create more knowledge about these disorders to ensure the best possible guidance and treatment for these children. Professor Conny will walk 1200 km for this cause.

Donation summary

Total raised
€285.00
Online donations
€285.00
Offline donations
€0.00

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