We only told Hattie when we got the official diagnosis. We never wanted to lie to her, or give her any information that wasn’t 100% true. We explained it was a cancer, and sometimes in your body things grow that need medicine for them to go away. She had nine rounds of chemotherapy, where she was admitted to hospital. The hope was to shrink the tumour and remove it after Christmas. Unfortunately, because of its position, they’re not able to remove it. So, she then went for proton beam therapy in Manchester, before a year of maintenance chemotherapy.

Hattie’s resilience throughout all this has really helped us. She copes with everything amazingly. She’s always been very strong-willed and I think that has done her really well. Even with this horrible thing going on, she just has so much positivity.

Her brother, George, and sister, Ellie, have been great with her. They’re both amazing, and very caring towards her. COVID and lockdown happened while we were in Manchester, so they weren’t able to visit. It was literally just Hattie and I there on our own. It was quite lonely for us, so to come home and have lockdown together for three months, was actually quite nice. 

The support we’ve had is amazing, our family are brilliant and friends have been incredibly supportive. When we were away for six weeks, and people couldn’t visit us, her friends wrote Hattie letters, our families wrote her letters, people were Zooming her.

Even though she missed almost a year of school, her teachers made sure she felt a part of things. She’s doing well now, and is back at school, fitting in like she’s never been away. Hattie doesn’t quite manage full days, but she goes every day that she’s well. She’s enjoying feeling normal, playing with her friends.

Hattie turned seven in August 2020. She’s a little bubble of energy, just trying to enjoy her life, boisterous and loud. She goes to street dance and has just started back again. She just loves to dance - we have discos in the house and glow stick parties! Everybody says she has such a nice smile and that she’s so happy and lovely. She’s incredibly kind and caring - she worries more about other children who have cancer than herself. She wants to do a sponsored event for her fund, which we’ve called Hattie’s Rainbow of Hope Appeal because she loves rainbows and all things colourful.

I read a lot of research papers and medical journals on rhabdomyosarcoma, and found that there’s not been a lot of research or changes in treatment in such a long time. Reading just how little funding there is, not just for rhabdomyosarcoma, but childhood cancer in general, we were actually quite shocked. We’re thinking in the long-term about what we can do, almost in return for the care and treatment Hattie has received. It’s our way of giving back, raising funds to lead to better outcomes for children in the future.

Thank you for taking the time to read about Hattie and her journey, we would all love for you to donate a few pennies if you can spare them, thank you so much.