Thanks for taking the time to visit my JustGiving page.

Many of you know,  my son George was born with a rare heart disease called hyper plastic left heart syndrome or HLHS for short . In laymen terms he only has half a heart , he has no left chambers at all !

• At 6 days old he had the first of 5 open heart procedures  ,not only did he survive the odds of surviving birth he also got through the first open heart operation , we was home 13 days later with our amazing bundle of joy, 

•  18th months old following a sickness bug we was told ' your son is technically dead ! , his shunt is blocked ' literally by a miracle he created his own calactrols , which has never been known before as children are normally born with them , however 9Ltrs , yes you have read right 9 ltr of Oxygen a minute going through his mask  was helping this young toddler stay alive.

• At 11 years old in 2011 following 2 abandoned open heart procedures after 9 - 10 hrs in theatre in Leeds, we was informed to take him home while we could & enjoy some quality of life left . We was told 6 - 8 months at the most .

• Arranging his funeral , his bucket list & organising end of life care with the local children's hospice , we also sought second opinions around the world including stem cell research in Japan . Both GOS & Birmingham children's hospital told us , he would not survive the operation as it was too risky . We was also informed by many he was not a suitable candidate for a heart transplant.

• However in 2013 , Freemans in Newscastle successfully extended his life some what ( 25 Yrs )  by completing the re plumbing of his right side of the heart to also work for the left too.

• Before now , we could only live day by day , not knowing if our son was going to be there in the morning or not . We got tremendous amount of support from family , friends , St John ambulance , work mates and various charities such as Little hearts matters & Heartline ,  where we met other families going through the same as us and sharing experiences  but the team was also a fantastic support too in the office.

• 2 years on and now on yearly appointments , we can now plan further ahead , because of the situation I am in now , I would like to raise money into the research and medical advancement into CHD and continuous support for families affected by it.

• Please would you consider supporting me in my challenge and consider donating to help me  reach my goal of raising £500 , not in memory of my son but for my son and many children born with CHD every day & help these little tickers ticking. Thank you 

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