Thanks for taking the time to visit my JustGiving page! I'm doing my first ever proper run to help raise money for The SMA Trust.
SMA (spinal muscular atrophy) is a genetic neuromuscular disease, which means it is inherited and affects nerves responsible for muscle function. It is the leading genetic cause of death of infants and toddlers. Not only do 95% of the most severely diagnosed cases result in death by the age of 18 months, but children living with SMA face the prospect of progressive muscle wasting, loss of mobility and motor function.
The SMA Trust are the only UK charity solely dedicated to funding medical research into SMA to try and help find a cure.
All donations welcome!