Kate Lynn-Devere
Remembering Alex
Fundraising for Cardiac Risk in the Young
Story
Text PXNY59 £2 / £5 / £10 to 70070 to donate by text
The Acoustic Valium Project and The Bedford in Tunbridge Wells have teamed up to put on a weekend music festival to raise funds for CRY in Alex's memory. The event will take place on Saturday 25th and Sunday 26th of May, starting at around 2pm.
My beautiful daughter Alex died aged 13 in July 2005 of a previously unsuspected congenital heart defect. Alex had been away on an adventure holiday with school friends for a week, and was looking forward to a barbeque with friends from church the next day, which, as luck would have it, was the first day of the summer holidays, and in her first year as a teenager - it was going to be such an adventure. She didn't make it to the barbeque; she didn't wake up that morning.
Alex was a beautiful, healthy girl, and she vanished from my life so quickly that I doubt I will ever breathe the same way again. I've heard people say that pain makes you stronger. It hasn't made me stronger, it's left me broken, and I don't want to be strong, I want my daughter to be alive. I could accept it more easily, if her death had been completely unavoidable, but it wasn't. If Alex had been tested, she might still be alive today.
Alex was such a warm, kind and loving person that I can think of no better gift in the year that she would have been 21, than to raise funds for CRY to help prevent the deaths of other young people.
CRY was founded in 1995 to raise awareness of conditions that can lead to young sudden cardiac death (YSCD); sudden death syndrome (SDS) and SADS
CRY promotes:
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