Rob Woollen

Rob Woollen West Highland Way

Fundraising for The SMA Trust
£1,651
raised
by 65 supporters
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Participants: Rob Woollen
The SMA Trust

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RCN 1097765
We fund research into SMA to help find a cure and treatments

Story

UPDATE: I had the pleasure to meet David Dee the other day. He is a lovely lad and I was inundated with air-kisses! I will be running the Stockholm marathon with Jonathan Dee in June 2012. Want to meet him? http://www.youtube.com/watch?v=LxQLzNHlmxc&feature=youtube_gdata_player

 

http://menmedia.co.uk/manchestereveningnews/news/s/1465089_parents-in-race-against-time-for-boy-with-incurable-spinal-muscular-atrophy

I read about David Dee's story in the paper on the same day that I received some sad news. It brought home to me that my own challenges are miniscule compared to those faced by some. Children are a precious gift and a hard loss. I do this in hope for David's future and in loving memory of my brother Steven Woollen, my cousin Sarah Ball and for other reasons of my own.

On 23rd June 2012 at a minute past midnight, I will be running in the West Highland Way mountain ultra-marathon from Glasgow's Milgavnie Station to Fort William at the foot of Ben Nevis.

The distance? 95 miles

The terrain? Mountainous!!!!

I hope to do it in under 30 hours and expect to suffer from hallucinations, sore knees and a little bit of tiredness. I would not have a chance in hell without the support of Richard Kilburn, Matt Johnson and Steve Trevor, and my wife Lorraine.

It will be a hard day for me, but little David Dee will never have the opportunity to do this race. I can so I will. You could do the same, or for an easier option, just make a donation and make it worth my while. So dig deep.

Ooh - Little disclaimer - I paid my own race fees, and will (with the kind support of a friend or two) pay my own way through the race. Every single penny you donate here goes to the SMA Trust

About the charity

The SMA Trust

Verified by JustGiving

RCN 1097765
SMA is a genetic disease that affects motor neurones. 1:40 of us is a carrier and in its most severe form children rarely live beyond 2 – making SMA the leading genetic cause of death in babies and toddlers. The SMA Trust is solely dedicated to funding research into a cure and treatments for SMA

Donation summary

Total raised
£1,651.00
+ £343.25 Gift Aid
Online donations
£1,651.00
Offline donations
£0.00

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