Our Mallorcan friends have been devastated by the diagnosis of Sandhoff Disease for their wonderful son Rodrigo.

Without treatment or a cure, he won't live beyond his adolescence. Research is progressing, and there's hope that there could be life-saving treatment available in time to make a real difference.

Its a race against time for Rodrigo and children just like him. All donations, how ever large or small, will help bring about a brighter future for them.