Five kilometres doesn't seem like a long way to run, but it's a distance that Eliza will never manage on her own as long as she has Rett Syndrome. At nearly 6 years of age, she has only been walking for a year, after we were told she would never reach this milestone. She can still only walk short distances and often falls, and is only really safe walking inside.

Eliza and I will be doing this run together - I will be pushing Eliza in a buggy, so that she gets to take part in the race, rather than always being on the sidelines.

Eliza was a happy, healthy, content baby and developed normally until we realised at around 14 months that she was not reaching all her milestones.

She went on to have endless tests and we slowly watched her lose the ability to wave, point, sit unaided, feed herself and say any words. At the age of 3 we received the diagnosis of Rett Syndrome.

Most of all we would like Eliza to be able to speak and to tell us how she feels. We would love to hear her voice again. Her big brother, Angus, often reminds us that among other things, she used to be able to say "tractor" and "cucumber"! Her younger sister, Nina, does not remember Eliza ever speaking.

Rett Syndrome has stolen Eliza's ability to do almost all the things that she should be doing - running, jumping, dancing, singing, telling stories, making friends and going on playdates.

Reverse Rett fund the scientists that are giving us hope for a cure. Please help them to help our little girl.