Jane Lowe

Running With ME

Fundraising for Action for M.E.
£161
raised of £500 target
by 6 supporters
Donations cannot currently be made to this page
Event: Edinburgh Marathon Festival 10k 2017, on 27 May 2017
Participants: https://www.facebook.com/runningwithme/
Action for M.E.

Verified by JustGiving

RCN 1036419
We provide understanding and support to improve the lives of people with M.E.

Story

Facebook page for updates: https://www.facebook.com/runningwithme/

I was diagnosed with Chronic Fatigue Syndrome in October of 2013, after a year and a half of doctors appointments and being probed and prodded, filling out form after form after form - and many many spells of google searches and occasional bouts of hypochondria. I was at university when Man-Flu-like symptoms hit me like a sledgehammer And my local doctors were at a loss - there was nothing wrong with me. They suggested that I may be depressed, under the weather, stressed because of living the life of a university student completing a masters. 

As many in my position have probable felt - I started losing faith in the medical establishment as well as doubted my own sanity. Having always strived to work hard, do my best, and in recent years turn into the best runner the world had ever seen - my sudden lack of energy had me wondering if I'd slept through a personality transplant and turned into a lazy leech. I went from running 20 kilometres just for fun, to losing my breath from walking up half a flight of stairs. My short lived dream of taking the world by storm through running (I was going to run the length of continents and enter 10 marathons a year) was in jeopardy and so was my livelihood.

I finished my masters degree and moved on to the world of working women- I had rent to pay, a motorbike to maintain and trips to save up for. Only problem was I started getting sicker. The man-flu-like symptoms were outdoing themselves, transforming me into a person that stuttered, couldn't count to ten, stopped running or even exercising every day, and God-forbid I wanted to have more than a 5 minute conversation with my friends and family. The only person that I could spend time with was my boyfriend - and that was because we lived together. My parents were worried, my friends thought they had lost me, and I was petrified of what was to come. 

And so I found myself, another sick day claimed, sitting in a doctor's office thinking that I would, once again, be told there was nothing wrong with me. My headaches were a figment of my imagination, I didn't have a cold, my tonsils were not swollen and my fatigue (constant bone-aching fatigue) was probably due to lack of sleep and depression. A steely resolve settled over me - I was not going to let the doctor walk all over me… Again. 

I did start crying that session… Out of relief. I had a diagnosis. The past year and a half of test and agony had managed to result in the diagnosis of Chronic Fatigue Syndrome - followed by the caution “We don't know how to fix it, what causes it or how you can get better.” I didn't care - there was a name for what was happening to my body and my mind. I could do research, I could hunt for answers but most of all I WASN'T CRAZY! 

And so began the long and arduous struggle to get better, to get back to my dreams, to start running again. Thanks to the Chronic Fatigue Clinic in Edinburgh I learnt about pacing myself, learning to say no and learning about what I could and couldn't do. 

I made life altering changes - changed my job, started talking to family and friends, started walking. Walking led to jogging a few hundred meters at a time. Slowly a hundred meters turned to a kilometre and just kept on going. I started being able to stretch my legs out to sprint, felt the steady beat of my feet pounding against the ground. 

I am still on the road to recovery but firmly on my way to being the strong woman I know myself to be. I couldn't have done it without the support of family, friends, understanding doctors that no longer see M.E./CFS as Yuppie Fever, and my loving partner. I have the support structure in place to help me get better and get back on track for running across a continent. Or two. 

Not everyone out there has been as lucky as me, has the support structure to help them out. Everyone needs someone to stand by them and let them know they are not crazy, it is real, it is hard, and there is something you can do about it. THIS is why I am here. I can help make a change. I have not let this debilitating autoimmune disease get the better of me and more people need to know about the impact it has not only on the person, but on their families and friends. 

This is why I am Running for ME/CFS. I am running because it is my passion, my dream, and a medium to show that we can get better. I ask for those around me to help through support, understanding and/or spreading the word that ME/CFS exists and needs the attention it deserves. 

I am pledging to run one race a year to raise both awareness and funds towards ME/CFS. Together we can make a difference, we can show we care, we can be part of the support structure for those in need.

About the charity

Action for M.E.

Verified by JustGiving

RCN 1036419
At Action for M.E. we're working to end the ignorance, injustice and neglect experienced by men, women and children with M.E. We provide a lifeline of support to thousands of people each year, campaign to raise awareness of M.E. and work to encourage more high-quality biomedical research.

Donation summary

Total raised
£160.20
+ £3.25 Gift Aid
Online donations
£160.20
Offline donations
£0.00

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