Bethan Haigh Tribute Fund

SMA UK is raising money for Spinal Muscular Atrophy (SMA) UK
In memory of Bethan Haigh
SMA UK is a national charity supporting anyone affected by spinal muscular atrophy, a rare genetic, neuromuscular condition that causes muscle weakness and loss of movement. We offer support and information and advocate on issues important to the SMA Community.

Story

Bethan lived life to the full, never letting the limitations of SMA define her. She would set her mind on being able to do something and between us all we would find a way to make it work, whether it was being winched up and released on a zip wire by her friends or having birthday parties at an ice rink! 

Life is not the same without her but we know how blessed and incredibly lucky we are to have had her add so much to our family and friends. 

Bethan was a beautiful, amazing, brave, funny, determined and inspirational girl who will always be loved beyond words and missed beyond measure.


Donation summary

Total
£22,320.10
+ £714.85 Gift Aid
Online
£4,049.49
Offline
£18,270.61

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