Thanks for taking the time to visit my JustGiving page.

We are raising money for the ichthyosis support grop who have been fantastic since Harry was born.

After having 3 daughters  was finally pregnant with my long awaited son.  4 weeks early Harry was born by c-section & the theatre fell quiet.  I was told my son had "tight skin" & it was splitting, they didnt know what was wrong or the prognosis.  After 2 days a paediatric dermatologist came to visit Harry in the NNU & explained he was a collodion baby (only 1 : 600,000 babies born with this rare condition)  he was born in a tight waxy membrane which caused his limbs to be contracted & he was swollen fairly badly.  His eyelids were turned outward & his mouth was forced open due to the tightness of his collodion membrane.  The collodion membrane came away after a few weeks & he has now been left with a rare skin condition to which there is no cure it is called "non-bullous ichthyosiform erythroderma"  He needs baths twice a day, regular emolliants to keep his skin moisturised & hydrated & he wears special garments at night over a greasy moisturiser.  There are many different types of ichthyosis of which Harry is mild, however, we feel the ISG gave us so much support & introduced us to more families affected by this that we wish to help their charity.