Story
After seeing all of the hard work done by Rob Burrow, Kevin Sinfield, and all other family members and friends involved, I’ve been inspired to raise money for the awareness and research into MND.
Throughout my childhood, Rob Burrow was my favourite rugby league player, and his skill, speed and agility was what got me into Rugby League in the first place. No other player had as much, and never will have as much, flare on the pitch! He is, in my opinion, the most exciting player to have ever graced the sport. Rob inspired me from a young age because of this, and this continued as the news of his condition came to light. The work that Rob has done in raising awareness, is nothing short of sensational and he has touched the hearts of so many people. I wish to be one of the many that continue to raise this awareness, in hope of finding a cure and aiding those with the disease.
This campaign will lay the foundations for human trials of a pioneering therapy for Motor Neurone Disease (MND). The fatal disease affects the brain and nerves and causes weakness over time. There is currently no cure for the condition.The work led by Bristol-based neurosurgeon Professor Steven Gill brings combines three elements: Gene Therapy with Viral Vectors delivered via Convection Enhanced Delivery CED.It is known that specific viruses can have a therapeutic effect on motor neurons and a technique called Convection Enhance Delivery (CED). This is able to deliver these viruses directly to the neurons in the brain. For many diseases such as MND. Delivery of genes to affected neurons to correct or repair defects has been a major challenge.The cost of the pre-clinical stage is £150,000. Thanks to My Name5 Doddie Foundation we are a third of the way there! Please help support our campaign by donating and together we can hopefully make a major breakthrough that will help.