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£394.45
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Sophie Tennent avatar
Sophie Tennent

Sophie's page

asking for people to join in fundraising/donating for IiME because over the past 2 weeks their have been 5 M.E losses

788 %
£394.45
raised of £50 target
by 29 supporters

IiME

We fund biomedical research into ME to create a strategy for cure/treatment

Charity Registration No. 1153730

Story

All donations will be going directly to M.E research trials currently being held by Invest in ME as we are still getting NO GOVERNMENT FUNDING!!.. If you would like to learn more about Invest in ME and this research then please go to:
http://www.investinme.org/about.htm


I have set up this new just giving page in remembrance to all those who have lost their lives due to this life sucking condition. I am heart broken again to hear about another death in the M.E community (one that happened in February but has only just been announced due to
the sensitivity of it)
That makes 4 that have happened in the past 2 weeks as well as the one i found out about yesterday..

 I don't know the exact cause of all 5 deaths, but I know a couple of
them were down to suicide due to the lack of support, understanding, lack of medical/research funding and care given by the government/medical community which led them to feel like they had no other way out.
Whether these deaths are due to people taking their own lives or complications that this illness brings on, something honestly has to be done soon as this is beyond tragic and heartbreaking and now seems to be happening more and more.


  Many of us M.E warriors spend hours of my time and energy on these things, not to spam your Facebook, not to annoy you with constant posts, not to depress you with these things but to make people aware of a condition that too could strike them at any time. To make people aware that they may not hear about it but there are children who are missing school and who have had their lives stolen by this condition. To make people aware that people aren't getting the help and support that they need because it's not a 'well known' or 'understood' condition. To try and help make a difference to many of our new friends on Facebook, some who can't even leave their houses, some who have sadly now passed and show them who are still battling on that we are willing to speak out and fight for them and their condition.

Someone once asked me  why I'm trying to take on the world instead of just focusing on myself and my own health problems due to my M.E, and my simple answer is that I'm not, but if everyone who has a voice about something as important as things like illnesses kept quiet, then nothing would ever change. You would never know about any of these conditions if people didn't speak out about them. You may never have heard of the early signs/symptoms of things such as cancer, dementia, parkinsons, M.S etc which can help prolong and save your life. Never have realised that the start of funding was needed all them years ago for these conditions to help treatment and hopefully find cures, which has got them to where they are today (I know there is still a long way to go with every condition, but they have also managed to come a long way to where they once was) And we just want the same chance as these conditions, to be able to move forward instead of continuing to move backwards, leading to tragedies like those i have heard of.


 What I'm trying to say is that if people are not willing to push these
things or out these things out there, then nothing will ever change. So
yes, we may post about M.E a lot, you may get sick of seeing us asking
you to help with awareness and donations and funraising etc, but just think how sick we are of being sick and just wanting to be heard, supported and understood. No doubt years ago, there was people with these other now well known conditions doing the same as what myself and others are doing now (without the social media obviously aspect lol) and look where that has now got them. They are heard, supported and understood. That's all that we want too.

So please donate if you can and help us become through research like other conditions that effect our day to day.. Heard, understood, supported and on its way to finding a cure.

Lets do it for all those who sadly are no longer with us..

R.I.P


Yvonne Smith Feb 2016
Jodi Bassett 11/6/16
Louise Ramage in the past few days (unsure of exact date)
Tink Bastion 23/6/16
Linda Hayes Burke 23/6/16



Thank you to anyone who has and does support me and others with raising M.E awareness and funding by just a simple share or donation
etc, you will never know how much that truly means to us!

When I becomes we, even illness become wellness <3






Thanks for taking the time to visit my JustGiving page.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.

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