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Patricia Dainton avatar
Patricia Dainton

Trish's Page

Fundraising for Huntington's Disease Association

£1,726.20
raised by 234 supporters
Donate

Huntington's Disease Association

HDA England and Wales exists to support anyone who is affected by Huntington's disease. It pursues the best possible care; provides training & advice to families and professionals; raises awareness; and promotes research towards better treatment and ultimately a cure.

Charity Registration No. 296453

Story

Thanks for taking the time to visit my JustGiving page.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.

So please dig deep and donate now.

This page is in memory of Stephen (Steve) who sadly died on 27th January 2011 after a long struggle with Huntington's Disease (HD).

Steve became symptomatic around 18 years before he died. In that time the disease ravaged his very being by taking away his ability to do even the most basic things which we all take for granted such as walk, talk and even swallow.

Steve's spirit was never broken but he died when pneumonia attacked his already thin and weak body. He died aged 49.

Steve is at peace now but the disease goes on. As somone who witnessed first hand how cruel this disease can be it is only fitting that this JGPage be opened to help the Huntington's Disease Association, in however small a way.

Every child born to a parent with HD has a 50/50 chance of inhertiting this devastating disease for which, as yet, there is little treatment and no cure. Steve leaves many relatives at risk of HD or in the throes of the disease.

 

 

 

Photos

10
  • Added in respect of the Palace Goals :-)
  • Getting thinner but still smiling
  • Boarding Concorde +8

Supporters

234