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Jacqueline Griffin avatar
Jacqueline Griffin

In Memory of Steve Penney 1954- 2014

creating this page in memory of Steve Penney for CdLS Foundation UK because He was a Founding Trustee of CdLS Foundation

246 %
£1,726.00
raised of £700 target
by 41 supporters
Donate

CdLS Foundation UK

The CdLS Foundation exists to ensure early and accurate diagnosis of Cornelia de Lange Syndrome ; promote research into the causes and manifestations of the syndrome and help people with a diagnosis of CdLS to make informed decisions throughout their lifetime

Story

Steve was a great supporter of CdlS Foundation even before it became a registered charity.  Over the years he raised thousands of pounds to support those people affected by the condition and was a regular attendee, friend and confidante at all of the conferences and family meetings.  He will be greatly missed by all of the Trustees and families and Professionals who dealt with him.  This page has been set up by the Foundation to enable those who knew Steve to show their appreciaion for a cause he greatly loved.   

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