Sunita Devi-Paul

From hair-raisers to fund-raisers..

Fundraising for CGD Society
raised of £3,000 target
by 207 supporters
Donations cannot currently be made to this page
CGD Society

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RCN 1143049
We provide information and support to those affected by CGD


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During a 7-week stay in hospital in 2018, our son Raylen (aged 5yrs old at the time) was diagnosed with a serious health condition that prevented his immune system from fighting off infections. As a result, Raylen would get frequent bacterial and fungal infections, and had to take daily medication to stay healthy. However, problems can still arise and lead to serious illnesses and prolonged periods in hospital. The condition is thought to affect around 8 to 10 people in a million and is a life-threatening and life-limiting condition. The only cure for our son's condition was a Bone Marrow Transplant to be carried out at Great Ormond Street Hospital.

Prior to having the Bone Marrow Transplant, Raylen had to go through Chemotherapy, which meant losing his hair. To help Raylen come to terms with this, our families and friends took on the challenge of shaving their heads or going very short. Sunita (Raylen's mum) and 7 family members took on the challenge and each donated 7" to 10" of their hair to the Little Princess Trust, who will use the hair to make wigs for children affected by hair loss as a result of cancer treatment or other conditions. Before and after pictures of all those taking part are in the gallery.

This page was set up to support 2 charities; 

1) The Little Princess Trust who will receive our donated hair, with the hope that it helps to put smiles on the little faces of those that receive a wig. 

2) The CGD Society who will receive the donations from this page. Raylen has been in hospital for 7weeks and has had his chemotgeraphy and bone marrow transplant but will remain in hospital until he recovers and to monitor his progress closely. We are indebted to the CGD Society for the important research and treatment plans and to the team at Great Ormond Street Hospital, for their continuous care and dedication to nursing sick children. Whilst we have reached the £3000 target that had been set, we have decided to keep the page open and continue with our fundraising as the CGD Society are entirely reliant on voluntary donations to fund it's research into this very rare condition. 

We have already had a hair-raising challenge, dress down day at work, raffle and cake stall (see gallery). We would like to raise more funds and are looking for any new ideas. If you have any fundraising ideas you can get in touch with Sunita or Jay at: 

Please share this link and get your family and friends to donate. 

Thank you for reading and for your support. All donations are gratefully received. 

About the charity

CGD Society

Verified by JustGiving

RCN 1143049
The Chronic Granulomatous Disorder (CGD) Society is the leading global charity dedicated to providing information and support to all those affected by CGD. The charity funds a clinical nurse specialist at Great Ormond Street Hospital for Children and responds to enquires from all over the world.

Donation summary

Total raised
+ £1,161.50 Gift Aid
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Offline donations

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