Story
My 6 year old daughter, Faith, is living with Dravet Syndrome - a neurological gene disorder that includes difficult to treat epilepsy, mobility struggles and learning difficulties. Only this month, Faith fractured her collarbone during a violent seizure.
Her lovely godmother Natalie Armstrong and my equally lovely friend Karen Green will be embarking on the above cycle ride on Saturday 25th April 2020. They are both amateur cyclists and this is a massive challenge for them.
Want to join me in supporting their amazing plight? They are raising money for Dravet Syndrome UK and your contribution will make an impact, whether you donate £5 or £500. Every little bit helps. Thank you for your support. I've included further information about Dravet Syndrome UK below.
Dravet Syndrome UK is the only charity dedicated to changing the lives of those affected by Dravet Syndrome in the UK. We achieve this through our 3 aims:
1) Funding medical research into Dravet Syndrome.
2) Raising awareness of Dravet Syndrome within the medical profession.
3) Supporting families affected by Dravet Syndrome practically, emotionally and financially.
Dravet Syndrome is a rare neurological condition causing severe, difficult to control seizures, alongside varying degrees of learning disability and other issues, such as autism, mobility problems, speech difficulties and feeding problems.
Thank you for taking the time to visit my JustGiving page.
Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.