On the 29th April 2021, our daughter was diagnosed with Cystic Fibrosis. To any new parents, negative news about your child's health is upsetting. So you can only imagine, hearing the news about our baby girl having a chronic life shortening disease, is beyond anything we could ever imagine. Cystic Fibrosis is an invisible disease meaning many people are not aware of it or that people are living with it.

Cystic fibrosis (CF) is a genetic condition affecting more than 10,600 people in the UK. You are born with CF and cannot catch it later in life, but 1 in 25 of us carries the faulty gene that causes it, usually without knowing. 1 in 2500 babies are born with Cystic Fibrosis. 

The gene affected by CF controls the movement of salt and water in and out of cells. People with CF experience a build-up of thick sticky mucus in the lungs, digestive system and other organs, causing a wide range of challenging symptoms affecting the entire body. 

We would love to raise money for this incredible charity Cystic Fibrosis Trust, who for years have been funding research into new treatments and been campaigning to make life saving drugs available on the NHS for everyone who can benefit from them.

Life-saving drugs, also known as precision medicines, CFTR modulators and modulator therapies, work to tackle the underlying cause of cystic fibrosis. However much these drugs are lifechanging, they are not a cure. We need one desperately.

Money that is raised through our page, will be donated to Cystic Fibrosis Trust in the UK. So they can continue campaigning to make these life saving drugs available to all, and to invest in the development of new therapy and treatment for CF. 

Best wishes

The Martin family (@thelittledreamer - instagram)