Vincent Johnsson

Vincent's 5 a day challenge

Fundraising for Reverse Rett
£18,950
raised of £10,000 target
Vincent’s 5 a day challenge , 10 June 2020
Reverse Rett

Verified by JustGiving

RCN 1136809
We 're working to bring treatments for Rett Syndrome home

Story

Hi there,

So, I will be moving my body a minimum of 5k a day for at least 500 days by running, crawling, cycling or any other means to get around the distance.

The whole thing was triggered by the amazing Tim Jones who had started running 5k a day for the year leading up to my start. After only having found out he was doing it days before he was coming to an end I decided to take over the batten and started this challenge on 3 March 2020, the same day Tim finished and will continue until 16 July 2021. Maybe at the end of this someone else will take this on from me.

Due to Covid-19 and the need to shield entirely most of my first three months of this challenge were done in our house or garden adding an extra level of challenge.

This is nothing however compared with the challenge my daughter faces every day. She is also the reason we are shielding in this way.

All support will go to Reverse Rett and will contribute to a possible cure of my daughter’s condition in her lifetime. More information about the charity and the condition can be found on the Reverse Rett webpage. www.reverserett.org.uk

Thank you for any support you can give however small or big. #changeispossible #5aDay #500Days

Here is a short video what your support will do for our family. 

https://youtu.be/85reP2CTw7Q

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About the charity

Reverse Rett

Verified by JustGiving

RCN 1136809
Reverse Rett is a patient advocacy and research organisation focused on delivering treatment for Rett Syndrome to all affected. Read more here: reverserett.org.uk For Rett Registry UK: https://www.rettregistry.uk/

Donation summary

Total raised
£18,949.72
+ £185.00 Gift Aid
Online donations
£11,439.72
Offline donations
£7,510.00

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