Mikey Sheen

Walk for Wiggly Eyes: Nystagmus Network

Fundraising for Nystagmus Network
raised of £5,000 target
Donations cannot currently be made to this page
Nystagmus Network

Verified by JustGiving

RCN 1180450
We foster and fund research to improve lives for people with nystagmus.


I will be hiking my way across both New Zealand's islands, South and North, with the occasion kayak where required (and to mix things up a bit). And I will be keeping you updated along the way as I journey my way across the Te Araroa, a pathway that runs the length of the picturesque country that is New Zealand.

So what will they do with the money raised?

The Nystagmus Network is a UK registered charity which provides support and information, raises awareness and funds research. Nystagmus Network is run by volunteers and a small staff team. They rely on fundraising, memberships, donations and gifts in wills to enable them to provide support, fund research and raise awareness of the eye condition nystagmus. Nystagmus Network have teamed up with Fight for Sight, and together they have set up an exciting opportunity for a Project Grant award. The money you donate will help raise the £250,000 required for the length of the grant which will last over three years. The grant is currently open to applicants for both clinical and non-clinical research scientists wishing to lead a research project to address sight loss associated with Nystagmus. The aim of the research is to build research capacity of post-doctoral researchers. More details to follow, but for now find further details at:


Please continue to watch this space for exciting developments and announcements coming up over the next few weeks and months. Also follow

Nystagmus Network’s blog HERE

for further developments.

Find more details on the great work Nystagmus Network are doing at:


About the charity

Nystagmus Network

Verified by JustGiving

RCN 1180450
Nystagmus means involuntary movements of the eye. It impairs vision, affecting focus and depth perception. At least 1 in 1,000 babies are born with nystagmus. There is currently no cure. The Nystagmus Network is a UK registered charity which provides support, raises awareness and funds research.

Donation summary

Total raised
+ £217.55 Gift Aid
Online donations
Offline donations

* Charities pay a small fee for our service. Find out how much it is and what we do for it.