Carmela Chillery-Watson

Carmela's LMNA WONDER WOMAN Relay 2021

Fundraising for Muscular Dystrophy UK
raised of £1,000 target
Campaign by Muscular Dystrophy UK (RCN 205395 (England and Wales) - SC039445 (Scotland))
Will you join Carmela & her team to Stand Up To LMNA Congenital Muscular Dystrophy?


Carmela has the help this year to tackle Stage one 170miles but not just with her and mummy but Emily, Lottie and Ruby and of course Tinker the Wonder Dog, who will be helping to clock up the mileage so Carmela doesn't experience too much strain on her weak body causing dizziness, sickness and pain.

Carmela absolutely loves Wonder Woman and only last year Carmela took on 300km in 30 days dressed as her hero but it really did take it out of her with some days being in pain and suffering with vertigo sickness due to her spine curvatures and strain on her weak muscles.

We would like to run the challenge again but with the help of teams to see if we can raise thousands towards medical research to help give these children hope of a future or even just a treatment to slow the progression down.

Carmela's rare progressive disease is called LMNA Congenital Muscular Dystrophy, affecting only around 1 in a million. The severities vary amongst each individual with some born dependent on breathing aids and unable to sit or walk or use their arms effectively, whilst others lose these some years after birth. Most individuals suffer with joint contractures and spine deformities and some unfortunately lose their lives before their an adult due to heart and respiratory complications. Carmela will lose the ability to walk in some years to come so this challenge means alot to her and us as a family.

Mutations on the LMNA gene can present as one of four types of LMNA related disorders:
LMNA Congenital Muscular Dystrophy #LCMD LMNA-CMD
Emery-Dreifuss Muscular Dystrophy Type 2 #EDMD2 Emery Dreifuss Muscular Dystrophy
Emery-Dreifuss Muscular Dystrophy Type 3 #EDMD3
Limb Girdle Muscular Dystrophy Type 1b #LGMD1B Limb Girdle Muscular Dystrophy (Beyond Labels & Limitations, Inc.)

The aim is to help spread awareness and fundraise towards research in to a treatment or cure to help us have hope of a future.

We have helped fund 2 medical research projects with the help of followers, friends and family and hoping that research in to the LMNA gene will help all 4 types above have a treatment or even a cure.

The challenge starts 1st September for the whole 30 days of the month. The 1500 miles is the total it takes from Carmela's home county to where they filmed Wonder Woman in South Italy.  There are 4 stages to choose from which needs to be completed in 30 days. You can decide to either walk, run, cycle, swim and or push.

Complete it as a team or even go solo if you think you are up for the challenge. Please take selfies and tag Carmela's social media platforms using the links below to help spread awareness making sure you use these hashtags - #wonderwomanrelay2021 #LCMD #MusclesMatter  #TeamCarmela                       

Carmela's Stand Up To Muscular Dystrophy (@ChilleryWatson) / Twitter

Carmela's Stand Up To Muscular Dystrophy | Facebook

Instagram is @carmelachillerywatson

Also tag MuscularDystrophyUk

Choose one of the stages below. 

STAGE 1 - Wiltshire - Dover 170miles (5.7 miles per day - solo or between your team)

STAGE 2 - Dover - Paris 222 miles (7.4 miles per day - solo or between your team)

STAGE 3 - Paris - Milan 510 miles (17 miles per day - solo or between your team)

STAGE 4 - Milan - Palinuro 600 miles (20 miles per day - solo or between your team)

You can use this fundraising page for sponsorship if you are keen to take part and support Carmela in her quest to help others like her.

You are taking part at your own risk as a virtual personal challenge and Carmela and all involved with this challenge are not responsible for any injuries etc.

About the campaign

Will you join Carmela & her team to Stand Up To LMNA Congenital Muscular Dystrophy?

About the charity

Muscular Dystrophy UK

Verified by JustGiving

RCN 205395 (England and Wales) - SC039445 (Scotland)
Muscular Dystrophy UK is the charity bringing individuals, families and professionals together to beat muscle-wasting conditions.

Donation summary

Total raised
+ £119.00 Gift Aid
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