Tony Boyle

Tony's page

Fundraising for Genetic Alliance UK
£1,270
raised of £500 target
Donations cannot currently be made to this page
Event: Adidas Manchester Marathon 2023, on 16 April 2023
On 28 April we will be celebrating our 11th annual awareness day, Undiagnosed Children's Day - raising awareness of undiagnosed genetic conditions and funds to support children and their families affected by them.

Story

SWAN UK supports families affected by a syndrome without a name - a genetic condition so rare it often remains undiagnosed. They are the only dedicated support network for these families in the UK.

https://www.undiagnosed.org.uk/support-information/what-does-swan-or-being-undiagnosed-mean/

https://www.undiagnosed.org.uk/swanuk-news/news_category/family-story/


About the campaign

On 28 April we will be celebrating our 11th annual awareness day, Undiagnosed Children's Day - raising awareness of undiagnosed genetic conditions and funds to support children and their families affected by them.

About the charity

Genetic Alliance UK

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RCN 1114195
We are a national alliance of over 220 charities and patient support groups. Together we advocate and campaign for the 3.5 million people in the UK with a rare, genetic or undiagnosed condition - improving diagnosis, care coordination and treatment options. We run Rare Disease UK and SWAN UK.

Donation summary

Total raised
£1,270.00
+ £285.00 Gift Aid
Online donations
£1,270.00
Offline donations
£0.00

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