Our son Aaron is 8 years old and attends Trinity Academy Primary School in Middelton Tyas.  Aaron has a rare life threatening inherited metabolic condition called Ornithine Transcarbamylase Deficiency which means his body can not process any excess protein and he has a very restricted diet and daily medication to keep him stable.  If he ever gets a simple illness such as a tummy bug or tonsillitis he needs to be admitted into hospital for a drip until he recovers just to keep him safe.  Some of you may know he recently spent nearly a week in the Great North Children's Hospital in Newcastle following a random metabolic crisis.  His ammonia levels in his blood were dangerously high and he needed urgent treatment.  Although you can't tell by looking at Aaron that he has this rare condition, it does impact on his life every day and is never far from our thoughts. 

Aaron wasn't diagnosed until the age of 3 following lots of hospital admissions and being mis-diagnosed several times.  Following this our family has been supported by Metabolic Support UK who helped us come to terms with Aaron's condition, knew exactly how we were feeling and were always on the end of the phone if we ever needed advice or someone to talk to.  They support individuals and families across the world and cover over 700 metabolic conditions that most people have never heard of. 

The Metabolic Mile for Aaron walk at our Middleton Tyas site will be at 9am on Tuesday the 2nd July.  At Eppleby Forcett site it will be 9.30am on Thursday the 4th July. Parents, carers, friends, siblings and family members are all invited to walk with us at either site and join in the fun.  We'll be there with Aaron too and every child who joins in will receive a balloon.  Donations on the day or via this page will be great.  

We decided to start a justgiving page to share these events to the parents of our schools..  But also to let our other friends that aren't linked to the school know about it.  If you can help us make our target of £300 by maybe walking (or running?)  your own Metabolic Mile during the week of 1st July to 7th July please join our campaign.  Send me any photo's if you do and I'll share them with Metabolic Support UK.  If you're a member of a running club or gym, spread the word and help us get loads of people involved. 

Thanks for taking the time to visit my JustGiving page.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.