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Alex Kenning

Alex's Trek the Himalayas October 2019 page

I am going to be trekking up the Himalayas for ACT for SMA because a very close friend has a daughter with SMA type 1

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$140.90
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  • Team members: Sgt Graham Purnell, Royal Air Force. Marc Cornell and Gary Sheppard.
  • Event: Trek the Himalayas October 2019, 01 Oct 2019

ACT for SMA

The Ally Cadence Trust provides emotional and financial support to children affected by Spinal Muscular Atrophy Type 1, the leading genetic killer of under 2's with an average life expectancy of just 8 months. Children with SMA have very limited movement and may have breathing difficulties

Charity Registration No. 1133272

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Thanks for taking the time to visit my JustGiving page.

In October 2019 me and three others will fly out to Katmandu, Nepal and begin an 18 day hike up to the base camp of Mount Everest in the Himalayas. I am taking part in this epic trek to raise money for the Ally Cadence Trust for children with Spinal Muscular Atrophy. One of my closest friends, one whom I served alongside in Afghanistan, was given the devastating news earlier this year that his 1 year old daughter Grace, has SMA type 1. Where there is no cure for SMA Type 1, the Ally Cadence Trust provides vital support for those families who have a child with SMA and helps make everyday life that little bit easier. 

SMA Type 1, also known as Floppy Baby Syndrome, is the biggest genetic killer of under 2's in the UK. Although a life expectancy of 2 years can be given, around 80% of children sadly pass away before their first birthday. Muscle weakness can result in problems with feeding, swallowing, breathing and moving. A common cold can easily turn into pneumonia which can result in respiratory failure.

For more information on the Ally Cadence Trust and Spinal Muscular Atrophy please visit www.actsma.co.uk 

My goal is to raise $5000 over the next 18 months. Please dig deep and donate all you can spare for this well worthy cause. 

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.

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