Raising money for CMV Action Charity and CMV awareness

Dan Harrison is raising money for CMV Action

Participants: Dan&Helen Harrison, Lee&Amy Hanly, Sian Devine, Andrew&Debi Harrison, Raph&Gemma Simmons, Vicky Miller, Dariusz Silarski, ,Patrycja Sokolowska, Jen Clare, Ella&Livvie Harrison, Juliet Thomas

Donations cannot currently be made to this page

Tough Mudder Classic London West 2019 · 4 May 2019 to 5 May 2019 ·

CMV Action is a UK organisation of parents and volunteers, who have come together to support families, to raise public awareness of congenital CMV, and campaign for better prevention measures within our health service. We offer advice, support and friendship to anyone affected by congenital CMV, advocating for families and working with a number of medical professionals who have an interest in this field.

Story

Thanks for taking the time to visit my JustGiving page.

Alfie, our 4th Child and 1st son was born on 13th December 2018.  At first everything went well, although he was born outside the hospital!  Shortly after his birth he was taken into the special care unit, which we thought was just precautionary due to how he was born.  However, just over 12 hours later we were told the heart breaking news that he had 'brain abnormalities' along with other symptoms and they suspected cCMV (congenital Cytomegalovirus).  Shortly afterwards this was confirmed.

We had not heard of CMV prior to Alfie being born.  Over the past few weeks we have realised it seems to be completely unknown in this country even though it is the most common infection at birth in the UK and a major cause of childhood disability.  Congenital CMV is more common than Down's Syndrome and causes more birth defects and childhood deaths than Toxoplasmosis (from cat poo) or Listeriosis (from soft cheese).

We have put together a team of family and friends to take part in a Tough Mudder 10mile event to raise money for CMV action.  CMV Action are raising awareness of this virus and are working alongside medical professions to help research and provide information on how to reduce this common virus and ultimately eradicate it altogether in the future.

Please donate whatever you can as every little bit counts in helping this small charity.  Anything you can donate will make a big difference to CMV Action.

Please visit CMV Action's website www.cmvaction.org.uk as they have lots of information on the virus and their work.

Thank you for donating and supporting CMV Action and helping to raise awareness.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.

Donation summary

Total
£6,394.00
+ £1,096.75 Gift Aid
Online
£6,094.00
Offline
£300.00

Charities pay a small fee for our service. Learn more about fees