Story
Thanks for taking the time to visit my JustGiving page! It's fundraising time! Finn and I have decided to leap from an airplane on 23 October 2021 🐸🪂🐸 I'm kicking this off today as it has been a huge THIRTY SEVEN MONTHS since I have had any intravenous antibiotics! 💥💥💥
Here's a fact for you! We are all carriers of a gene called the Cystic Fibrosis Transmembrane Conductance Regulator, the proteins related to this gene act as channels between the inside and outside of the cells that control the movement of salt and water, I just have two damaged copies. I have an imbalance of the two components, I produce stickier, thicker mucus that gathers in the lungs, the pancreas and the digestive system creating a range of challenging problems. Scary right? 🧟♀️
☝🏼 in ✌🏼🖐🏼 are carriers of this recessive gene, that amounts to about two million people in this country alone, I was just an unfortunate blend of two genes.
I have endured this disease for the past two decades, thousands of treatments, antibiotics and pills, hours of time lost to all kinds of healthcare professionals. I find comfort in knowing that I'm not alone, 1️⃣0️⃣0️⃣,0️⃣0️⃣0️⃣ throughout the 🌍 are experiencing the same things. I also know that a handful of online friends who understand the frustration can make this world a little bit brighter! 🌟
I have adopted JustGiving to raise as much as possible for Cystic Fibrosis Trust to create a brighter future for those living with the condition, to develop better treatments and, ultimately 🧬 A CURE 🧬. We have seen huge strides in scientific advances over the last few years, I was put on a magical drug that almost alters and repairs the damaged cells to help them function sufficiently. I am so excited about the prospect of new medicines and the leaps and bounds that are happening all the time, it will certainly be a groundbreaking historical moment when this disease is a blast from the past.
No matter how big or small, your kind gesture will go towards something fantastic for everyone suffering with Cystic Fibrosis.
💛 THANK YOU 💛