My Niece Lyla was diagnosed with a very rare condition called Congenital Myotonic Dystophy. Running this marathon is a real challenge after all the indulging I have done over Christmas. James and I are taking on this challenge to raise as much as we can for a charity very close to my heart. Loveforlyla #lovesomeonerare is a charity created by my sister in-law for her daughter Lyla (my niece) who was diagnosed with the rare condition when she was only 8 months old... every penny raised for this charity goes in to research to help find a cure and treatment for the rare condition effecting many children and familys around the world, the same way it has effected my own. Please dig deep and show that you also #lovesomonerare... thank you ❤️ Loveforlyla #lovesomeonerare