Amanda Mortensen

Ronnie the dog's Batten awareness walking challenge

Fundraising for Batten Disease Family Association
£603
raised of £1,000 target
by 28 supporters
'13' in whatever way, to raise 13k for Awareness Day!

Story

Ronnie is a very special 18-month-old Labrador-cross... He is trying his hardest to be a therapy puppy (with varied success!)  for Livvy, who has a rare genetic condition and severe epilepsy. As well as this,  Ronnie has developed epilepsy himself and takes two medications every day.  His owner Amanda, the CEO at the Batten Disease Family Association, is going to take him on a dog walk with a difference on Batten Disease Awareness day. For his “13” challenge Ronnie needs to wear his bandana and say a friendly  hello to 13 dogs of different breeds prompting a conversation about Batten disease and raising awareness. 

The BDFA provides support, advocacy and information to children and young people with Batten disease and supports their whole family. On 9th June 2021 it is international Batten Disease Awareness Day and the BDFA have a week of awareness events planned! Ronnie is proud to support this fundraiser to raise awareness of the 13 types of Batten disease...

About the campaign

About the charity

Batten Disease Family Association

Verified by JustGiving

RCN 1084908, SC047408
Batten disease is a group of rare, progressive neurodegenerative, genetic metabolic diseases that occur in children & adults worldwide. The BDFA's Vision is to be the central point of excellence in the UK for supporting affected families funding research into a potential cure.

Donation summary

Total raised
£602.32
Online donations
£602.32
Offline donations
£0.00

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