Firstly thanks so very much for taking time to visit my justgiving page. My  niece Ruby  suffers with Central Core Disease which  is a disorder that affects those muscles used for movement (skeletal muscles). This condition causes persistent muscle weakness that predominantly impacts her legs. Although it is not generally expected to worsen over time, it is nonetheless categorised under the 'dystrophy' term. That is why I am again seeking to raise funds for MDUK

Ruby is an amazing young girl that allows nothing to prevent her enjoying activities as much as any other young child her age. Despite requiring a walker from a very early age Ruby has been hugely determined and for example attends dance classes  to join in with her peers. My brother Michael and sister in law Nassera have equally been amazing in the way they have and continue to deal with the challenges Ruby's illness brings. They utilise resources through MD for information and support. 

Ruby is an inspiration and this led me to taking the decision to challenge myself to do something neither I nor many who know would have ever thought I would contemplate. I ran the London Marathon 2019 yes 26.2 miles!! and I actually loved it so why not do it again on its 40th anniversary. London 2020 Well that was held virtually due to the pandemic which I completed as a walk but I’m now running London in October 2021

One  of my biggest supporters was Mum she helped organise  fundraising for 2019  with the Halloween event with her pals and also card sales and raffles and at our New year party fundraiser event. Mum watched the coverage of the run in 2019 and when the system  froze she worried something awful had happened and said after don't put me through that again 😘. But of course Mum was as supportive when I said Im running again. Sadly she passed away last week (May 2021) so wont be able to see me run but has asked for donations in her memory 🧡 Of course Mum will be with me in my heart for every step and I shall carry her photo with  me. 

I will also be starting some fundraiser events once all has settled one of which will be a 10k run with pals for Ruby’s 10th Birthday in July. 

Please help and support Muscular Dystrophy UK to hit their £250,000 London Marathon 2020 target. A target which could help fund over 5,581 hours of ground-breaking research!Muscular Dystrophy UK is the charity for 70,000 people living with muscle-wasting conditions. Were making a difference today, providing vital information and support to help people live as independently as possible. Were making a difference for tomorrow, accelerating progress in research and driving the campaign for access to emerging treatments