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Please help to find a cure for Mitochondrial Disease

Amee Garala is raising money for The Lily Foundation

Team: Remembering Jyoti Bruce

In memory of Jyoti Bruce
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Great Eastern Run · 14 October 2012 ·

Our vision is for a world in which every mitochondrial disease patient has a voice and access to treatment, support to improve their life and, ultimately, a cure.

Story

Thanks for taking the time to visit my JustGiving page.

Jyoti Bruce. She was and continues to be an inspiration to me for so many reasons. I will be running the Great Eastern Run with and in memory of Jyoti, hoping to raise money for the Lily Foundation. They help fund research into Mitochondrial Disease and other metabolic disorders. Jyoti suffered from a condition that has no cure. Since the age of 8 years, she suffered from seizures, tunnel vision, balance difficulties, motory issues on her left side of her body. The amazing thing I remember about Jyoti is all of this did not matter, she carried on with life as normal. If anything, it made her more determined to achieve her dreams...and she most definitely did that.

iMitochondrial myopathy is a collective term for a group of diseases that particularly affect the muscles, but which may also affect every other part of the body including the brain.

On the 28th March 2012, and after 4 weeks of consistent seizure activity, Jyoti's brain was unable to cope any longer and she sadly lost her battle against Mitochondrial Disease and passed away at the young age of 23, leaving her loving husband, mother, father and older brother.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGicing - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it's the most efficient way to donate -I raise more, whilst saving time and cutting costs for the charity.

Thank you,

Amee J

Donation summary

Total
£237.00
+ £53.75 Gift Aid
Online
£237.00
Offline
£0.00

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